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"The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives."


Online Privacy Notice

The Epilepsy Foundation wants to protect the privacy of visitors to our website. The information users voluntarily share with us will be used to improve the quality of our services and to promote public understanding and education about the impact of epilepsy on people's lives. The Foundation has adopted the following privacy policy governing its website. The privacy policy is continuously being revised, and we welcome your thoughts, which you may send to Users who have provided us contact information will be informed upon changes to our privacy policy.

What personally identifiable information does the Foundation collect from me?

The Epilepsy Foundation respects the personal privacy of the visitors to our website. We believe keeping your information private and a secure environment is very important. When you browse the informational portion of our website, you do so anonymously. Personal information is not collected, unless you voluntarily provide us with that information as described below.  In order for the website to improve its performance and design and to provide you with better services, we track anonymous aggregate usage information through analysis of log files. The type of information collected is basic statistical data, such as channels and sections viewed, time of access and amount of time, search phrases used to reach the Foundation's website, and browser type. This information is not personally identifying you in any way, and we cannot get back to you, the user, through this data. We use this aggregated information in order to learn what are the most popular sections of our website, for general promotional purposes and for making decisions about the future strategy and direction of the website. The aggregated information may also be shared with third parties to promote Epilepsy Foundation services and the website or to add to general knowledge concerning the public's need for epilepsy education and treatment services.

What happens when I sign up with the Foundation online?

You voluntarily provide us with personal information when you choose to become a website member, make a donation, or subscribe to our newsletter. The information we collect through these transactions includes such things as your name, address, phone number, email address and, when you make a financial transaction, your credit card number in entered but it is NOT saved. This allows the Foundation to send you messages and to share information with you that we think you may find useful. We study our users' demographics, interests and behavior based on this information voluntarily provided for a variety of reasons, including having better information on the needs of people with epilepsy and how to improve our services.

Donor records are kept in the strictest of confidence.  If you would like to have your name removed from future communications, please let us know by sending an email to

What is a cookie and how does the Foundation use them?

When you voluntarily join, make a donation, or sign up for our newsletter, a cookie is placed on your computer hard drive. A cookie is a small amount of data stored as a text file. The data contains a unique identification number assigned by our system that recognizes your browser when you come to our computer, but does not recognize you as an individual. These cookies remain on your system and are automatically retrieved when you return to our website at a later time. We use cookies to remind us of who you are in order to send you information you have requested and deliver to you a more personalized service.  You may choose to set the Internet properties of your computer so that you are alerted each time a cookie is being stored on your computer or you may choose to prohibit the collection of cookies all together. In addition, you may delete cookies that have already been stored on your hard drive. If you do prohibit the collection of cookies, understand that you will need to re-enter your email and other information each time you go to the portion of our website that requires the input of identifying information.

Linked Internet Websites

The Foundation hyperlinks to numerous websites that we believe are of interest to people with epilepsy. We do not control the privacy policies of business partners, advertisers, sponsors or other websites to which we may provide hyperlinks, and the privacy policies of any of these third parties may differ from ours. When you hyperlink to the website of one of our business partners, advertisers, sponsors, or other websites, you are subject to their privacy policies and not those of the Foundation. The Epilepsy Foundation is not responsible for such provisions and expressly disclaims any and all liability related to the privacy policy or practices of such other websites.

Where should I go if I have a question or a complaint about the Foundation's privacy policy and practices?

If you have any additional questions about your privacy on the Epilepsy Foundation's website, or if you believe that your privacy may have been violated by the Foundation, please feel free to contact the Foundation at