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"The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives."



Springfield Capitol Building

Join us on May 4th, 2016 as we travel to Springfield, Illinois to talk to the state legislators about how they can help people with epilepsy and seizures. The bus will leave our office at 8:30 a.m. and return at 5:00 p.m. Lunch and a t-shirt are provided.  We still have a few more seats available on the bus. Join us in Springfield and teach others about epilepsy.

For more information, please call (618) 236-2181 ext. 108 or register online.


Give STL Day is Fast Approaching: May 3, 2016

Springfield Capitol Building

On Tuesday, May 3, be part of Give STL Day and make a difference in St. Louis!

The St. Louis Community Foundation is once again joining hundreds of community foundations across the country for the biggest day of giving in history.

Give STL Day is a 24-hour giving event that helps our local nonprofits. Imagine the impact we can have when the whole community comes together to give on May 3rd! Just take a look at what we accomplished last year. We can do even more!

Watch Amelia Bond's interview on KSDK and you will hear how important Give STL Day and the St. Louis Community Foundation is to the St. Louis region.



Sara's Run

Sara's Walk will be held on Saturday, May 21, 2016 at the Mount Vernon Outland Airport in Mount Vernon, Illinois in memory of Sara Elizabeth Stubblefield. The event will consist of a 1 mile walk, lunch, music, and giveaways all to benefit the Epilepsy Foundation of Greater Southern Illinois - Southern Region.

For more information, please call (618) 244-6680 or register online.



As more adults and teenagers with refractory epilepsy are trying dietary therapies to control their seizures, many of them are reporting that they tried the ketogenic diet when they were younger (sometimes even when they were infants!). In some cases, the diet was stopped because of problems (intolerability, or poor seizure control), but, in others, the diet was stopped after 2 years as "planned."




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A cohort study using 2008-2011 data from the National Hospital Ambulatory Medical Care Survey found that seizure emergencies accounted for more than 1.3 million U.S. emergency department visits annually, suggesting that there are substantial unmet needs related to seizure emergency management and coordination of care for patients with epilepsy. Additional data from a separate analysis of conversations that occurred in physician offices revealed communication inconsistencies between physicians and epilepsy patients and their caregivers regarding treatment goals and what constitutes a seizure emergency. Findings from these studies were presented at the 68thAnnual Meeting of the American Academy of Neurology (AAN) in Vancouver, April 15-21, 2016. Both studies were supported byUpsher-Smith Laboratories, Inc. (Upsher-Smith).




Camp RoehrThe Epilepsy Foundation of Greater Southern Illinois will host its annual Camp ROEHR being held June 26th through July 2, 2016 at Yogi Bear's Jellystone Park in Eureka, Missouri. This year the campers will get to spend one fun filled day at Six Flags over Mid-America. Camp ROEHR gives young people between the ages of six and eighteen with epilepsy a variety of opportunities to focus on their strengths. With a staff of caring, qualified counselors and medical support personnel, the children are able to make new friends and have a great time in a safe, supportive environment. Join us for an exciting, fun-filled camping experience without another moment lost to seizures. We are in need of “high energy” volunteers for camp counselors, nurse, a photographer, and activity enthusiast. For camper or volunteer information, contact Janet Shearrer at (618) 236-2181 ext. 114 or email at

Click here for more information...


Nurse Training



It's an EASY way to help the Epilepsy Foundation of Greater Southern Illinois!!

Schnucks Escrip

Swipe your card before checking out, and Schnucks will donate 2% - 3% of your purchase to the Epilepsy Foundation of Greater Southern Ilinois.

Doesn't cost you anything!

Call us at (618) 236-2181 ext. 111 to receive your card.


SEIZURE MEDICATION LIST medications do you or your loved one take to control epilepsy? Do you know the adverse effects of those medications or the potential drug interactions?  Take a look at this in-depth list of seizure medications provided to you by the Epilepsy Foundation. Treatments are available that can successfully control seizures for most people with epilepsy. The first treatment is almost always one of the many seizure medications that are now available. Each medicine tends to work better with certain kinds of seizures than for others. If one treatment fails, another may be work better. Click here to view more information about the medication you or someone you love is taking. 



Epilepsy & My Child Toolkit


SUDEP Family Resource Guide

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