Epilepsy & My Child Toolkit: A Resource for Parents with a Newly Diagnosed Child - As heard on NPR, a new resource for parents of children with newly diagnosed epilepsy is now available. Click on toolkit for information on how to order your copy today.
Recommendations for Care of Children with Epilepsy - This new resource is a booklet providing useful information for parents of children with epilepsy. Click here for a copy of the Recommendations for Care of Children with Epilepsy booklet.
Recommendations for Care of Adults with Epilepsy - This new resource is a booklet providing useful information for adults with epilepsy. Click here for a copy of the Recommendations for Care of Adults with Epilepsy booklet.
SeizureTracker.com - Free online tools to provide people living with epilepsy and their doctors with a better understanding of the relationship between seizure activity and anti-epileptic medication dosages. Reports generated on SeizureTracker.com include detail graphing capabilities and are easily shared and manipulated by caregivers. Click on SeizureTracker.com to be directed to the website.
Discovery Education and Epilepsy - Discovery Education and the Epilepsy Foundation have partnered to launch Understanding Epilepsy. Providing educators access to classroom resources that help broaden understanding about seizure disorders, Understanding Epilepsy also offers useful training materials for school nurses and administrators that ensure all school personnel know how to respond when someone experiences a seizure.
Available online at www.discoveryeducation.com/epilepsy/, educators will find a wealth of free materials developed by the Epilepsy Foundation, including lesson plans, first aid guides, seizure training for school personnel, and online training for school nurses focused on managing students with seizures. Free videos featuring teens living with epilepsy speaking about leading very fulfilled and active lives erase any stigmas associated with seizure disorders. Visitors also will find information debunking a variety of seizure disorder myths, such as the truth about the possibility of someone swallowing his or her tongue during a seizure, what impact flashing lights and video games have on someone with or predisposed to epilepsy, and general facts about the different types of seizures.
Program and materials available online include:
- Seizures and You: Take Charge of the Facts - an award-winning, school-based educational program with free lesson plans and multimedia to teach teens about epilepsy and seizures
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Take Charge of the Facts - a Web site created to accompany the Seizures and You program, designed especially for high-school students to explore on their own and hear directly from teens living with epilepsy
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Seizure Training for School Personnel - a program teaching seizure recognition and first aid
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Managing Students with Seizures - free online training through the National Association for School Nurses
Click on www.discoveryeducation.com/epilepsy/ to be directed to the website.
Epilepsy Foundation National Youth Council website - The Epilepsy Foundation National Youth Council www.goeyc.org website is the spot for young people with epilepsy. This website is targeted for young people with epilepsy to learn about living with epilepsy, meeting other people like themselves, and generally have a place to talk, share stories, and hang out with other people affected by epilepsy. Users can also play games, watch videos and more! Click on www.goeyc.org to be directed to the website.
Safety and Seizures - These tips are to help people live more safely with seizures. Topics include safety around the house, safety for kids, safety outdoors, and safety on the road. Click on Safety and Seizures to be directed to more information.
Seizure Dogs - Seizure dogs can help when a family member is having a seizure. A few dogs may even be able to predict when people will have a seizure. For more information about seizure dogs, go to www.epilepsyfoundation.org/epilepsyusa/aboutseizuredogs.cfm.
The following places offer training for seizure alert dogs. *Disclaimer: We don't endorse products but want to let people know they are available.
PAWS With a Cause: http://www.pawswithacause.org
Canine Partners for Life: http://www.k94life.org
4 Paws for Ability: http://www.4pawsforability.org/seizuredogs.html
Little Angel Service Dogs: http://www.littleangelsdogtraining.net
Canine Assistants Program - The pharmaceutical company UCB, Inc., and Canine Assistants Program have developed a partnership to sponsor seizure response dogs for people with epilepsy. Under the sponsorship, UCB, Inc. provides support for the care, training and lifetime veterinary costs of all dogs given to epilepsy patients. For more information, go to http://www.ucb.com/patients/programmes/canine-assistants.
Seizure Alarms - Bed motion monitors and alarms for detection of erratic movement such as Nocturnal Epileptic Seizures. Some of these are devices that are not specifically/directly designed to detect seizures. However, the public has found that these devices can work for detecting seizures, especially if parents want to be alerted if their child has a seizure while they sleep. *Disclaimer: We don't endorse products but want to let people know they are available.
For more information about seizure alarms, please go to the following links.
www.BedSeizureAlarm.com
http://www.escape-co.com/other_lights.htm
http://www.smarthomeusa.com/Shop/Motion/Optex-Chime
Patient Medication Assistance Programs - In these difficult times, a number of pharmaceutical companies have come forward with expanded or new patient assistance programs to help individuals needing seizure medication. Click on the Patient Medication Assistance Programs for a list of the current programs.
Epilepsy Classroom - Created for parents and teachers, Epilepsy Classroom™ is here to provide advice, insight, and tools that can help make handling epilepsy just another part of the school day. Epilepsy Classroom™, developed by UCB, Inc., is a cooperative program with the Epilepsy Foundation. Click on Epilepsy Classroom to be directed to the website.
What Health Care Reform Means to You: Medicare Part D - For more information about Medicare Prescription Drug Coverage & Health Care Reform, click here.
Together Rx Access® - Prescription Savings Program - In Illinois, more than 1.6 million residents do not have healthcare coverage. Together Rx Access® is a prescription savings program supported by leading pharmaceutical companies to help eligible hardworking Americans and their families gain access to the medicines they need to take care of their health. The Card is FREE TO GET and FREE TO USE! Nearly 2.5 million people nationwide are cardholders. Those who have used their Card have collectively saved more than $105 million! Click here to visit TogetherRxAccess.com.
Career Opportunities for People with Disabilities - Federal government agencies are hiring now! People with disabilities who are interested in working for federal government agencies should apply to: resume@benderconsult.com with "Federal Opportunities" in the subject line. If you have questions, please contact Sherry Homme at 412-446-4447; shomme@benderconsult.com.
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