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For the latest news on Epilepsy Research, click on the picture above.
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EPGP: EPILEPSY PHENOME/GENOME PROJECT
The Epilepsy Phenome Genome Project (www.epgp.org) is the largest research study ever created to identify genes that influence epilepsy and genes that affect an individual's response to seizure medications. The National Institutes of Health is partnering with major epilepsy centers around the country to collect detailed information on 5,250 individuals over five years. The goal is to understand what causes epilepsy, which treatment will be effective, and why some families have multiple relatives with seizures.
If you would like more information about the project please contact:
Website: www.epgp.org
E-mail: info@epgp.org
Toll-free Phone: 1-888-279-3747
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The Emory University School of Public Health is developing and testing an internet-based program called WebEase. WebEase is for people with epilepsy to assist with medication taking, managing stress, and improving quality of sleep. The Centers for Disease Control and Prevention (CDC) has funded the development and testing of the WebEase program.
What is WebEase?
WebEase is an internet program that supports the self-management of epilepsy by people with epilepsy. It offers information on three major topics as they relate to epilepsy: medication management, stress management, and sleep management.
How does the research study work?
To begin the study, each person completes a brief survey about medications, stress, and sleep. Then participants work through the WebEase program. WebEase consists of three modules: medication, stress, and sleep.
How to participate?
For more information, please click here.
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EFGSI fully supports the National Epilepsy Foundation agenda of raising funds for epilepsy research. Please mail research donations you raise for the Friends & Family campaign to the Epilepsy Foundation of Greater Southern Illinois, 140 Iowa Avenue, Suite A, Belleville, Illinois 62220. The Epilepsy Foundation of Greater Southern Illinois will forward the donations to the Epilepsy Foundation National office.
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