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OUR MISSION

 

"The mission of the Epilepsy Foundation is to stop seizures and SUDEP, find a cure and overcome the challenges created by epilepsys through efforts including education, advocacy and research to accelerate ideas into therapies."

 

 

THANK YOU TO STARS!!

Stars

The Epilepsy Foundation of Greater Southern Illinois would like to thank the student group Students Together Advocating for Rehabilitation Services (STARS) at SIU-Carbondale for supporting Epilepsy Awareness and the #DareTo campaign. Their Epilepsy Awareness tables provided information to a whole host of students and their bake sale raised $100.00 for the Epilepsy Foundation of Greater Southern Illinois! Way to help people #DareTo-Understand!

 

I AM (STILL) ESSENTIAL SURVEY

As we encourage the Department of Health and Human Services (HHS) to make additional improvements to essential health benefits, we need to have more information from our community and those who are experiencing difficulty gaining access to and affording the medications and specialists they need.  To help gather this information we created a survey that can be found at http://bit.ly/EFSurv.  We’ve already received some very useful responses, but we would love to get even more members of the epilepsy community to share their stories.

 
SEIZURE SUCCESS AND YOU

As a part of our “Seizure Success and You” initiative, we have been collaborating with Seizure Tracker users, Cyberonics, and other patient advocacy groups to ensure SeizureTracker.com meets the needs of VNS Therapy® users and their care providers.

Visit the “Seizure Success and You” web page to learn more about VNS Therapy, the tools available on SeizureTracker.com and the upgraded mobile app. Also, take the quiz to see how much you may already know about VNS Therapy.

http://www.seizuretracker.com/SeizureSuccess/VNS/

Although we live in a time with great progress in medical research, there is still much that needs to be done. Could you please take a couple minutes to share your thoughts about epilepsy research for children through this survey:

http://seizuretracker.com/SSYSurveys/Pediatric-Research/

As always, we want to thank the Seizure Tracker users and the epilepsy professionals who send us feedback on the Seizure Tracker tools. Without this valuable interaction, Seizure Tracker would not be the empowering tool it is today.

 
LEARN ABOUT SUDEP

Say SUDEP Document

SUDEP Family Resource Guide

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