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OUR MISSION

"The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives."

 

CAMP ROEHR JUST A MONTH AWAY!!
Jellystone Resort
Camp Roehr
Six Flags

The Epilepsy Foundation of Greater Southern Illinois will host its annual Camp ROEHR being held June 26th through July 2, 2016.

Yes, it is true. We are camping this year at the beautiful Yogi Bear’s Jellystone Park. And yes, we are spending a day at Six Flags!

YOGI BEAR is waiting for us to wake him up!!!

Camp ROEHR gives young people between the ages of six and eighteen living with epilepsy a variety of opportunities to focus on their strengths. With a staff of caring, qualified counselors and medical support personnel, the children are able to make new friends and have a great time in a safe, supportive environment. Join us for an exciting, fun-filled camping experience without another moment lost to seizures.

We have limited space available for “high energy” volunteers that are activity enthusiasts and for children wanting to have a camping experience like no other! Limited scholarships are available.

For camper or volunteer information, contact Janet Shearrer at (618) 236-2181 ext. 114 or email at janets@epilepsygsil.org.

 

 

FUN AT SARA'S WALK OVER THE WEEKEND
Sara's Walk Sara's Walk Sara's Walk


The Epilepsy Foundation Greater Southern Illinois-Southern Region hosted our annual walk for epilepsy on May 21st at the Mt. Vernon Outland Airport. Sara’s Walk for Epilepsy, named in memory of Sara Stubblefield is our annual fundraiser that benefits the southern region office. On a day that started out cloudy and cool, Sara’s Walk turned out to be well attended and represented the full spectrum of our population.  Our annual walk for epilepsy is an opportunity to for the community to support a great cause and get a chance to meet fellow supporters and other representatives of the epilepsy community. We would like to thank everyone who helped the event become such a success. Without everyone’s help, the Epilepsy Foundation of Greater So. IL-Southern Region would not be able to continue to serve the epilepsy population, care givers and their families through education programs, transportation, and our Pediatric Seizure Clinic.

Sara's Walk
Sara's Walk
Sara's Walk

 

 

DOCUMENTARY ON EPILEPSY AIRING ON PBS

“SEIZED: Inside the Mystery of Epilepsy” began airing on PBS this month. A production of Partisan Pictures and presented on PBS by Twin Cities PBS/Minneapolis-St. Paul, this hour-long documentary follows the personal struggles of four individuals and their families as they face the challenges of living with epilepsy and courageously search for new treatments. 

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PRESS RELEASE

A cohort study using 2008-2011 data from the National Hospital Ambulatory Medical Care Survey found that seizure emergencies accounted for more than 1.3 million U.S. emergency department visits annually, suggesting that there are substantial unmet needs related to seizure emergency management and coordination of care for patients with epilepsy. Additional data from a separate analysis of conversations that occurred in physician offices revealed communication inconsistencies between physicians and epilepsy patients and their caregivers regarding treatment goals and what constitutes a seizure emergency. Findings from these studies were presented at the 68thAnnual Meeting of the American Academy of Neurology (AAN) in Vancouver, April 15-21, 2016. Both studies were supported byUpsher-Smith Laboratories, Inc. (Upsher-Smith).

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Nurse Training

 

SCHNUCKS ESCRIP PROGRAM

It's an EASY way to help the Epilepsy Foundation of Greater Southern Illinois!!

Schnucks Escrip

Swipe your card before checking out, and Schnucks will donate 2% - 3% of your purchase to the Epilepsy Foundation of Greater Southern Ilinois.

Doesn't cost you anything!

Call us at (618) 236-2181 ext. 111 to receive your card.

 

SEIZURE MEDICATION LIST

http://d31hzlhk6di2h5.cloudfront.net/20150108/2e/62/da/bf/9d62b81d5b1c89bf0f9568d0_276x183.jpgWhat medications do you or your loved one take to control epilepsy? Do you know the adverse effects of those medications or the potential drug interactions?  Take a look at this in-depth list of seizure medications provided to you by the Epilepsy Foundation. Treatments are available that can successfully control seizures for most people with epilepsy. The first treatment is almost always one of the many seizure medications that are now available. Each medicine tends to work better with certain kinds of seizures than for others. If one treatment fails, another may be work better. Click here to view more information about the medication you or someone you love is taking. 

 

RESOURCES
Toolkit

Epilepsy & My Child Toolkit

SUDEP Guide

SUDEP Family Resource Guide

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